HOME! HOME! HOME!

We did it! We made it home! We did make it home for Christmas but something with Aaron just wasn't right...he was acting funny, very down and tired, eating constantly and throwing up at night. At one point the incision on his belly opened up and he saturated three dressings...back to Portland we went...evidently he had a pocket of fluid that built up and found a way out (his belly has just started to get smaller again). Home we went...Aaron continued to eat too much, sleep too much and was on edge most of the time. This Tuesday we take him down to see the neuro and he announces to us that Aaron's ventricles are so small they have actually disappeared(the next step past tiny is collapsed and that is a really BAD thing) so he turns the setting on his shunt up and ...well...now we wait.... But we are here and we are all together and Aaron seems to be over the worst of it. I showed him his pictures up on the blog and read him all of you wonderful comments and he was so excited that people were talking about him. Honestly you guys are wonderful and I know I have been impossible to get a hold of during this time but it has meant so much to have everyones wonderful support! What and honor! Love Amy

Wait...I have a P.S. . the two pictures i posted at the top of this post are from when Aaron first came home. It was a long trip and he and Andy fell asleep on the futon. The second set of pictures are from last year before Aaron got sick. It was a shock to look at the before pictures and see what a shinny happy little boy he was. I have shed quite a few tears looking at those pictures but now that his shunt is working properly I can already see my beautiful boy coming back. (here come the tears again) love, Amy