This is the first time I've had access to a computer in about 2 weeks. Normally I try and keep this part of my life to myslef but I really wanted everyone to know that I haven't been ignoring them. I've been down in Portland at Maine Medical Center's Childrens Hopsital where my son Aaron is currently recovering from two back-to-back surgeries. Aaron was diagnosed with obstructive hydrocephalus at two weeks (he was 10 weeks premature so it was nightmare on top of nightmare) and was shunted before he weighed 3 lbs. So far he has had 7 revisions and more time in the hospital than I can count. This time the Neuro's took out his entire shunt system (it is a device that leads into the brain and carries the excess fluid into the stomach) including all the tubing under his skin along his neck and into his chest. I knew soemthing was wrong the moment he came out of the first surgery but it took several hours before I could get anyone to pay attention to me (one crappy nurse in a pool of really amazing nurses can really screw stuff up!!!) So 8 hours later he goes in for surgery number 2: As the neuro said "everything that could go wrong went wrong" the tubing had gone into the wrong spot adn curled up upon itself so they had to get a general surg. in to held neuro palce it laproscopically, the sunt still didn't work so neuro had to replace the shunt system in his head...again, evidently he had had a small bleed and the shunt athiter had clogged. Now three days out his belly looks like he swallowed a basketball...here we go again...(sniff). I am just so frustrated and tired and sad. I never understand why these things happen to children...great now I'm crying...again. My hisband did bring me up my current book to work on. It took lots of written directions and phone tag for him to fill up a box of all the stuff I need to finish it but he did it! (Yeah...A little bit of normalacy). I am feeling better working on my pretty little book. I have my camera and hopefully I can figure out a way to get it listed...cuz I gotta to sell something to make a little bit of money (bleck!) Hopefully we be home soon and I swear I'll have more tiem to answer ALL of my emails!!! Love Amy
