This is the first time I've had access to a computer in about 2 weeks. Normally I try and keep this part of my life to myslef but I really wanted everyone to know that I haven't been ignoring them. I've been down in Portland at Maine Medical Center's Childrens Hopsital where my son Aaron is currently recovering from two back-to-back surgeries. Aaron was diagnosed with obstructive hydrocephalus at two weeks (he was 10 weeks premature so it was nightmare on top of nightmare) and was shunted before he weighed 3 lbs. So far he has had 7 revisions and more time in the hospital than I can count. This time the Neuro's took out his entire shunt system (it is a device that leads into the brain and carries the excess fluid into the stomach) including all the tubing under his skin along his neck and into his chest. I knew soemthing was wrong the moment he came out of the first surgery but it took several hours before I could get anyone to pay attention to me (one crappy nurse in a pool of really amazing nurses can really screw stuff up!!!) So 8 hours later he goes in for surgery number 2: As the neuro said "everything that could go wrong went wrong" the tubing had gone into the wrong spot adn curled up upon itself so they had to get a general surg. in to held neuro palce it laproscopically, the sunt still didn't work so neuro had to replace the shunt system in his head...again, evidently he had had a small bleed and the shunt athiter had clogged. Now three days out his belly looks like he swallowed a basketball...here we go again...(sniff). I am just so frustrated and tired and sad. I never understand why these things happen to children...great now I'm crying...again. My hisband did bring me up my current book to work on. It took lots of written directions and phone tag for him to fill up a box of all the stuff I need to finish it but he did it! (Yeah...A little bit of normalacy). I am feeling better working on my pretty little book. I have my camera and hopefully I can figure out a way to get it listed...cuz I gotta to sell something to make a little bit of money (bleck!) Hopefully we be home soon and I swear I'll have more tiem to answer ALL of my emails!!! Love Amy
9 comments:
Hi Amy:
I am so sorry to hear about your son, I am sure he will be o.k. soon and ones you get home, he is going to fill, a lot better.
I will keep him in my prays.
Kisses to your boy and talk to you soon.
Love
Margarita
Hi Amy,
Many hugs and alot of prayers from my heart.
Love,
Andreea
I am so glad that I took the time to read your blog. I had just been admiring your lovely book on ebay. I know that for the world to feel normal I need a neadle in my hand and a thimble on my right hand too.
My fervent prayers are with you, your family and especially your son. I know what ir is like to have the health care people shut down on your instincts about your child. What surprizes me is that some of these health care workers are mothers too.
Please demand a parent bed in his room and pur you feet up. Drink lots of water and know that Christmas is just a word for what you and your little family already have. It is just a word and holiday to fill empties up.
It is 2 am as I write this. Please know that a kindred spirit in Northern Ontario Canada has you in her thoughts and prayers, Yours Janet
Now I am crying too!
oh Amy! you have been going thru so much !
And Dear little Aaron too.
My gosh you must be so tired you don't see straight. I so wish I was there to share some of the burden. Urge you to get a little rest, pour some soup , tea or juice down you .
This is heavy on my mind and heart now that I know. SO glad you shared. It will help to have us out here thinking of you and sending you love over the miles.
Dear Dear Amy. Close your eyes and feel me reach out. I want you to be okay. I want to make it better...
I am sending gobs of love to you and Aaron. (and your husband must be hurting so much too)
Glad you got your art with you now- this will help you keep your sanity and be good for Aaron to feel you doing something normal too.
I hope you both get to go home soon.
Much LOve, S.
Hi Amy - Just checking in to see how you and your family is doing.
In hopes that Aaron got to go home for Christmas and is feeling better !
Thinking of you. Much Love and very best wishes.
S.
Stopped by to see if there were any updates on you and Aaron.
I am getting really worried now...
Really hoping you are all doing better.
Love, S.
Hi Amy:
I stoped everyday in here, I hope everything is o.k. I am a little bit worry.
Love
Margarita
hoping everything is going well, checking back & forth for new posts..your family is in my prayers ..be strong, art sister...
xox~K
I wanted to let you know I have been thinking of you and family also.
Post a Comment